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Ner's Random Musings on a life of interesting insights

a world of interesting factoids about nothing and everything


November 1st, 2007

more Christmas, pain, and hope @ 03:22 pm

Current Mood: in pain

Ok, so I went home early so that I could lay down, and what am I listening to, yes, Christmas music, and it's ... wait a minute, I covered that in my last entry. The real reason why I came home was because I've rescrewed up my rig on the left side. It was painful about four weeks ago, and I thought it was all healed and good, but it still moved around a bit and panged every once in a while. I was listening to some comedy on XM this morning and I can't remember what it was about, but it was so hilarious that the sneeze that aggravated it initially and the laughter this afternoon at lunch did me in. Because of my bone condition, my ribs are not flexible in the least. So when I cough excessively, sneeze, or have a great time, my muscle and cartlidge moves and my ribs do not. This hence separates my ribs from the bone, and hurts like freakin heck. I've got pain pills from when it happened last time, so I'm thankful for that. Things I'm not thankful for:

  • I'll most likely be in pain for a few weeks

  • I have to try to smile and project my voice, even though it's going to hurt like a mofo tomorrow for my presentation

  • Holly's coming to visit tomorrow and I'm really looking forward to seeing her. I want to feel good emotionally (no question of that) but I also want to be able to act as happy as I feel when she's around. We've got a packed weekend too (double date tomorrow night, meet the fam on Saturday and Sunday) so I have to try to be at my best.

  • And, it hurts to laugh. I'm a humorous person by trade. I make people laugh, and when this happens, I generally laugh too. So when I find something hilarious (this has happened a lot lately), I want to not be wracked with pain, again. This usually happens every four months or so. It hasn't happened two months in a row in a while, so this sucks too.


My final thoughts before I go and lay down.

  1. I hate the Twelve Days of Christmas. Note to self: look up why there's twelve days (Amber, is it because of Yule?). Still, I hate the song, it's so repetitive. Imagine that!
  2. Thirty minutes before offset of pain medicine is a long time when you really need it.

  3. I need thoughts, prayers, encouragement, and whatever anyone feels like they want to send me to get through at least tomorrow morning. After that, bliss, I hope. Yep, bliss!
 
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Comments

 
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From:xo_kizzy_xo
Date:November 1st, 2007 08:08 pm (UTC)
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Oh yuck. I cannot imagine what you must be going through. If you don't mind me asking, what type of bone condition do you have? The son of one of my coworkers has a bone condition too.
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From:djner
Date:November 1st, 2007 08:42 pm (UTC)
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I don't mind at all. I have an entry somewhere where I mentioned it and described it, but I don't know where it is. Here's the story though.

I have what's called osteopetrosis which is a very rare condition that they say only effects one in almost a million people. There's about 200 people in the U.S. taht we know of that have it. Basically it's the opposite of osteoporosis, I have way too much calcium in my bones. I've never met anyone with the disease, and most either die when they are infants or very young or have complications like mental retardation or other things. I've been extremely blessed.


It's a genetic condition that causes my bones to be extremely hard and brittle. If you know anything about bone density tests, 1 is normal. Osteoporosis people have like .6 or .7, something like that. My bone density is around 13.

So when you have really dense bones like mine, they are so dense that when I fall, I generally break my bones. Any simple fall will do it, and they break much like marble would, straight across. I usually break my long bones (I've broken both of my arms, my femurs several times, and various other asundry bones, but I mostly break my arms and legs if I fall). It has been fve years, almost, since I've broken anything, and I want to keep adding onto that time. My bone condition was what caused my total blindness as my optic nerve canal was filled in by calcium and extra bone. In a nutshell, my blindness is not my disability at all. What limits me the most is my bone condition because a normal scrape or misstep that many blind people do all of the time (running into walls, stepping off of curbs the wrong way, etc.) can land me in the hospital for weeks.

It's a tough existence, but I manage it and I believe I can manage anything. In fact, challenges seem to be my natural drug of choice. Given a challenge, I am driven to overcome it. Most times, I either create my own path around my obstacles. Sometimes I buldoze straight through the walls that jump in front of my goals and aspirations. To use slang that I've learned just recently, that's just how I roll :).
Sorry for totally going off on a detailed description, but I haven't explained it in a while, so with the combined effects of pain medication and the previous fact, I thought I'd explain. When on Pain meds, I tend to get more keyed up, so I get really prolific and explanatory at these times. Too bad I have to be in pain for it to come naturally. Thanks for asking, and I'm looking forward to reading your coming entries and hearing from you in further comments.
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From:xo_kizzy_xo
Date:November 1st, 2007 09:52 pm (UTC)
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No, I don't mind you getting prolific at all :)

I'm trying to think if my coworker's son has what you have or osteoporosis. He's about 15, small for his age, and is confined to a wheelchair. Any type of fall -- like you -- causes his bones to break. He's even broken a couple of ribs while coughing. I lost count how many he's actually broken. It doesn't affect his sight, though. I'll ask coworker the next time I see her.

Another nosy question: How do you manage LJ being blind? How do you "read" what's up on the screen?
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From:djner
Date:November 1st, 2007 10:35 pm (UTC)
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If I were to guess, I would guess that your co-worker's relative has osteo Genesis imperfecta. That sometimes confines people to wheelchairs, and their bones are more like eggshells than marble like mine. That's why they are so confined, because even walking can break bones.

I read using what's called a screen reader. Basically, the computer reads what is on the screen using synthetic speech. I then can control what's being read to me (move through the page etc.) by using the keyboard. It's pretty neat, and if I didn't ahve the technology that I have, there would be no way I could do my profession.
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From:xo_kizzy_xo
Date:November 2nd, 2007 06:30 pm (UTC)
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That's exactly what he has -- I remember the "imperfecta" part. He's a real nice kid. He sometimes does the play-by-play for one of our area Triple A baseball teams.

The screen reader sounds (heheh) interesting. It makes sense.
From:vitaoamore
Date:November 2nd, 2007 06:04 am (UTC)
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you're amazing.
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From:djner
Date:November 2nd, 2007 06:07 pm (UTC)
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Definitely apreciate it. Thanks for being supportive.
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From:falcon13
Date:November 2nd, 2007 06:02 pm (UTC)
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ENCOURAGEMENT!!!!
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From:djner
Date:November 2nd, 2007 06:08 pm (UTC)
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Encouragement well-received. Thanks!

Ner's Random Musings on a life of interesting insights

a world of interesting factoids about nothing and everything